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Your gift provides vital support to families like Jonah's
Jonah is eight years old. He’s a loving, happy child, who brightens the day of anyone he meets. But due to a severe, rare form of epilepsy, known as Lennox-Gastaut Syndrome, Jonah will never walk by himself. He’ll never be able to say, “I love you, mummy”. His mum, Jasmine lives with the constant fear that one day, Jonah just won’t wake up.
Jasmine’s strength and determination to give Jonah the very best life she can is incredibly moving to me.
But she can’t do it alone.
That’s why we’re here. Epilepsy Action Australia gives families like Jasmine’s a place to turn to when the world feels dark. Your support today, means so much to families like hers.
Please make a tax-deductible gift today so we can continue to reach out and help when life feels overwhelming for families like Jasmine’s.
Your donation is secure and protected.
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Jonah's journey living with epilepsy
Everything seemed fine when Jonah was born. By nine months old, he was diagnosed with a genetic disorder called Pachygyria, a malformation of the cerebral cortex and the family were warned to watch for seizures.
Struggling to cope with the news, Jasmine just hoped a seizure would never happen. She worked intensively with her son to meet milestones, and he was making great progress. Then, at 16 months, he had his first seizure.
It felt like all the painstaking progress Jonah was making was ‘wiped out’ by seizures, leaving him exhausted. No matter how hard Jasmine tried or how much research she did late into the night, nothing worked.
When Jonah was eventually diagnosed with Lennox-Gastaut when he was about six years old, Jasmine turned to us for help.
Talking to one of our specialist epilepsy nurses made a big difference, Jasmine said. When she mentioned that she knew adults with Lennox-Gastaut Syndrome, that felt like a real lifeline for Jasmine.
Your gift today matters a great deal and ensures families like Jasmine and Jonah’s don’t have to be strong by themselves.
-09513aaa-662f-453a-82b4-a433a9618471.png)
-a0fb82d3-bdc6-4175-8d6b-e0935490063c.png)
-357b7d15-d40f-43a5-bc55-830e493f5132.png)
Your donation is secure and protected.
Your gift provides vital support to families like Jonah's
Jonah is eight years old. He’s a loving, happy child, who brightens the day of anyone he meets. But due to a severe, rare form of epilepsy, known as Lennox-Gastaut Syndrome, Jonah will never walk by himself. He’ll never be able to say, “I love you, mummy”. His mum, Jasmine lives with the constant fear that one day, Jonah just won’t wake up.
Jasmine’s strength and determination to give Jonah the very best life she can is incredibly moving to me.
But she can’t do it alone.
That’s why we’re here. Epilepsy Action Australia gives families like Jasmine’s a place to turn to when the world feels dark. Your support today, means so much to families like hers.
Please make a tax-deductible gift today so we can continue to reach out and help when life feels overwhelming for families like Jasmine’s.
Jonah's journey living with epilepsy
Everything seemed fine when Jonah was born. By nine months old, he was diagnosed with a genetic disorder called Pachygyria, a malformation of the cerebral cortex and the family were warned to watch for seizures.
Struggling to cope with the news, Jasmine just hoped a seizure would never happen. She worked intensively with her son to meet milestones, and he was making great progress. Then, at 16 months, he had his first seizure.
It felt like all the painstaking progress Jonah was making was ‘wiped out’ by seizures, leaving him exhausted. No matter how hard Jasmine tried or how much research she did late into the night, nothing worked.
When Jonah was eventually diagnosed with Lennox-Gastaut when he was about six years old, Jasmine turned to us for help.
Talking to one of our specialist epilepsy nurses made a big difference, Jasmine said. When she mentioned that she knew adults with Lennox-Gastaut Syndrome, that felt like a real lifeline for Jasmine.
Your gift today matters a great deal and ensures families like Jasmine and Jonah’s don’t have to be strong by themselves.
-09513aaa-662f-453a-82b4-a433a9618471.png)
-a0fb82d3-bdc6-4175-8d6b-e0935490063c.png)
-357b7d15-d40f-43a5-bc55-830e493f5132.png)
